Your experiences of accessing Neurodevelopmental Services

Report - 20 March 2025

In February 2025, Healthwatch in Sussex sought experiences of accessing Neurodevelopmental Services in the last 12 months.

Older man and younger man socialising in the street.

The Neurodevelopmental Service provides diagnostic assessments of neurodevelopmental conditions in adults. This includes autism spectrum conditions, Attention Deficit Hyperactivity Disorder (ADHD) and Tourette's syndrome.

Poll results

136 people from across Sussex shared their views with us.

We heard:

63 (51%) responders have been referred to, accessed or tried to access Neurodevelopmental Services for themselves and 49 (40%) responders for their child.
86 responders were very dissatisfied with waiting times for an assessment with the Neurodevelopmental Service.
73 of responders told us they have had challenges in accessing GP services.

Respondents to our poll expressed a desire for changes to waiting times and how appointments are managed.

Downloads

Poll Results: Experiences of accessing Neurodevelopmental Services

Download (PDF 110 KB)

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To feed into the development of the NHS University Hospitals Sussex five-year Dementia and Delirium strategy, we were approached by the Head of Nursing for Dementia and Learning Disabilities (NHS University Hospitals Sussex) to gather people’s views about their hospital experience. This study explores people who are affected by dementia and/or their carers’ experience of hospital attendance – either as an inpatient or an outpatient.

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